Thursday, November 19, 2009


Not much interesting going on today, unless you count the three times I have had poop on my hands. Anyway, here is an exerpt from an entry made last December, just before Daisy was discharged from the hospital. Looks like the prayers were effective.

This photo was taken on the same day as the entry, at Stanford Children's Hospital.

Wednesday is the big day. I will head down tomorrow to drive AW and Daisy home. Daisy is doing much better and has been sleeping in a bed with her mother for the last two nights. Daisy has been smiling and even giggling. She is out of the PICU and we will meet with all her doctors before discharge to discuss her prognosis. AW and I are grappling with the possibility that her lipid storage problem could be progressive and get worse over time. This has been a test of our strength and our love so far, and it is chilling to think that we could be tested further. We are praying and hoping that she will only get better, but we have learned that some forms of this condition, short of a miracle, do not give kids much of a chance. We will just try to be positive and take it day by day. It is not in our hands. Please pray.

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