If you have followed Daisy from the beginning, you know that she began her life 18 months ago with very low tone, respiratory distress and a preliminary diagnosis of a genetic disorder known as Trisomy 18. To read about Daisy's first days, click here. After several surreal and grief filled days, the chromosomal tests came back, and Daisy was found to be negative for Trisomy 18.
Daisy did not have an easy road from there, but there is no doubt that she has made amazing strides and beaten the odds. Daisy is a living breathing miracle and a testament to the power of prayer and love.
I have often wondered how things may have gone differently if she had in fact been Trisomy 18. I shudder to think. I do know that AW and I had resolved to do right by Daisy, as a team, no matter what came her way.
I recently ran across the blog of the mother of Brianna, a beautiful baby girl that was born in 2007 with Trisomy 18. I scanned back to the first entries, made shortly after Brianna was born. I was struck by the many similar experiences described by Brianna's mother.
For instance, she writes of how the doctors approached them shortly after Brianna's birth. She thought they were wrong, that the baby would be fine. In another post she describes how she accidentally pulled out Brianna's gastric tube. The same exact thing happened to me and I reacted the same.
The name of the blog is Brianna Gives Hope, and if you take the time to read through it, you will cry. The mother of Brianna is a hero. She was incredibly courageous and positive.
AW and I had a good cry after reading her writings. I have thought about how I feel about Brianna's family's experience and how it relates to our own. I can't help but wonder why we have been so blessed, why we got to keep our baby, why she has overcome. It doesn't seem fair.
Brainna's mother considers herself blessed as well.
1 comments:
I came across you blog through a google alert. I was drawn to it because of the title Brianna Gives Hope. Then I saw your precious little girl Daisy. She was standing and I thought wow, does she have trisomy 18. You see my daughter is 4 and doesn't stand as of yet. I was so blessed almost exactly one year ago to meet sweet Brianna face to face. Yes, her mommy and daddy also. They came to Houston and we spent the weekend marverling at our miracle babies. Next week, Brenda (Bri's mom) will be traveling to Texas and spending sometime with us. This will be the first time to see her since her Angel Baby when to Heaven.
I am going to scan back and read more about Daisy and your family. Did Daisy have any issues, genetic or whatever since finding out she isn't trisomy 18??? Thank you for this writing on her mommy, the hero and I am also glad how it let me to your blog. We have somethings in common beside our daughters intial early days and that my oldest son's dream has always been to be a pilot and also I am married to AH...attorney husband.
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